These are just a few of the more common side effects reported by people who took Topamax in clinical trials. When my doctor prescribed Topamax to me I was also in bed crying, we were on Zoom together, so maybe she said something about my taste buds going funky and I don't remember lol. BUT, I've taken the damn vaccine and I still wear my mask and I'm antisocial and have social anxiety so I don't even go outside and if I do (to walk my service dog) I stay away from people AND I STILL WEAR MY DAMN MASK so I kept thinking 'how on earth could I have gotten covid if I'm never around people. For people ages 12 and older, the recommended total daily dose for preventing migraines is 100 mg per day, divided into two doses. Last medically reviewed on October 25, 2022, Trokendi XR, which is used for epilepsy and migraine, can cause side effects such as weight loss. Weight loss is a common side effect of Topamax. Below are answers to a few frequently asked questions about Topamaxs side effects. If untreated, this condition can lead to bone problems, including osteoporosis (weakened bones). Rarely, Topamax may cause mood changes. But there havent been studies done on Topamax withdrawal. To help make sure that you dont miss a dose, try using a medication reminder. These results were consistent with results of bloodwork performed years previously; at that time, her bloodwork indicated all evaluated levels were within normal limits except for low concentrations of ALP (40 U/L) and creatinine (0.6 mg/dL). Hair loss from Topamax is generally reversible. Ok so I drink a crap ton of Coca Cola and for some reason it taste like it has Vodka in it lol. Debra Rose Wilson, Ph.D., MSN, R.N., IBCLC, AHN-BC, CHT, problems with sleep, such as sleepiness or, speech problems, such as having trouble thinking of the right words to say, eye side effects, such as sudden vision changes*, severe, negative changes in memory or mood, high level of ammonia in the blood, which can cause, trouble with memory, concentration, or thinking clearly, Not in the United States? Topiramate is used alone or with other medications to prevent and control seizures ( epilepsy ). Learn more about some of the side effects Topamax may cause. For a general overview of Topamax, including details about its uses, see this article. Additionally, missing too many doses of Topamax (or suddenly stopping the drug) may increase the risk of seizures. Topamax may cause mood changes, including suicidal thoughts and behaviors. I am currently almost off Topamax now. For example, Topamax may cause eye side effects,* such as glaucoma. If you have liver problems, such as cirrhosis or hepatitis, you may have an increased risk of high ammonia levels in your blood from taking Topamax. In fact, carbonic anhydrase 4 may function as the principle CO2 taste sensor for the human body. Changes in taste was a common side effect reported by people who took Topamax for preventing migraine headaches in clinical trials. For a list of side effects that were more common for each of these uses, see the More common side effects section above. Its possible. However, I'm really losing weight. A 39-year-old Caucasian woman with longstanding epilepsy was initiated on topiramate therapy after experiencing a generalized seizure (she reported not taking any antiepileptic medication for years). When its time for you to stop taking Topamax, your doctor will lower your dosage slowly over time. It completely knocks out the effects of the phentermine. We comply with the HONcode standard for trustworthy health information. For this reason, following a ketogenic diet while taking Topamax usually isnt recommended. Talk with your doctor about the best diet and treatment for your condition, including whether Topamax is safe for you to take. SoI've been taking Topamax for a little over a week. Soda taste flat and chocolate taste bitter. Swallow the food mixture right away without chewing. Examples of mild side effects that have been reported with Topamax include: * To learn more about this side effect, see the Side effects explained section below. The easiest way to lookup drug information, identify pills, check interactions and set up your own personal medication records. Prior to the administration of topiramate, the patient had never experienced a loss of carbonation sensation while drinking numerous varieties of carbonated beverages throughout her life. Aswini et al23 noted reduced dental plaque when carbonated beverages were sipped with a straw; the straw concentrated the beverage on the tongue and minimized full-mouth exposure. Therefore, if carbonic anhydrase 4 is inhibited, taste perception of carbonation may be distorted, diminished, or completely eliminated. Topamax (topiramate) is a prescription drug that's used to treat epilepsy and help prevent migraine headaches. All rights reserved. If you have kidney problems, such as chronic kidney disease, you have an increased risk of both metabolic acidosis and kidney stones as a complication. Some rare side effects caused by Topamax may require treatment to make them go away. Or they may recommend switching from Topamax to a different treatment for your condition. People with the condition feel that all foods taste sour, sweet, bitter or metallic. Kidney problems. The topamax makes me SOOOOOO sleepy I can hardly keep my eyes open. It's not common but it can happen and did to me. If youre pregnant or planning a pregnancy, talk with your doctor before starting Topamax. Most of the participants did lose weight while on the drug, significantly more than the placebo group, however, the side effects discouraged some from continuing the trial. Promptly after the initiation of topiramate, the patient lost her ability to taste carbonation in all beverages, including soda, seltzer, and beer. The Topamax sprinkle capsule or Qudexy XR extended-release capsule may be swallowed whole or opened and sprinkled on a small amount (1 teaspoon) of soft food (eg, applesauce). At the time of writing, 12 months had passed since topiramate initiation and the patients sense of carbonation had not returned to normal. You can also talk with your doctor or pharmacist. Carbonic anhydrase is a zinc metalloenzyme that reversibly catalyzes the conversion of carbon dioxide (CO2) and water into carbonic acid (H2CO3), which rapidly dissociates to bicarbonate (HCO3-) and a free proton.18 Carbonic anhydrase inhibitors, such as acetazolamide and dorzolamide, prevent this conversion and have been reported to alter carbonation taste perception.19 In one reported case, after taking acetazolamide to prevent altitude sickness mountain climbers noted that their beer tasted like dishwater.20 Another case report described a 31-year-old woman who took acetazolamide to prevent mountain sickness and, within 90 minutes, developed a bitter taste sensation on consuming carbonated soda, tea, and Mexican food.21 The symptoms resolved within 14 hours after acetazolamide discontinuation. Theyll likely recommend you stop taking the drug and try another treatment for your condition. Talk with your childs doctor, or a pharmacist, if you have questions about Topamaxs side effects in children. In studies, this side effect was more common in people who took the drug to treat epilepsy than to prevent migraine headaches. However, it isnt known how often this side effect may have occurred in clinical trials. I had a few side effects to start with like tingling fingers, face and heels but that was bearable, and of course the weight loss which is an added bonus, but . But severe side effects that could lead to long-term problems and permanent damage from Topamax are possible. A 39-year-old Caucasian woman with epilepsy had a generalized seizure after 12 years without use of antiepileptic medication. And if you experience suicidal thoughts, its important to get help right away. HealthTap uses cookies to enhance your site experience and for analytics and advertising purposes. They may recommend a different drug for your condition. You should always consult your doctor or another healthcare professional before taking any medication. Please note, we cannot prescribe controlled substances, diet pills, antipsychotics, or other commonly abused medications. Following a ketogenic (keto) diet. You could also download a reminder app on your phone. Foaming at the mouth is a rare physical symptom of opioid overdose, seizures, rabies, and poisoning. Theyll recommend whether you should stop taking the drug. Thank you for submitting a comment on this article. MNT is the registered trade mark of Healthline Media. BMD describes how strong the bones are. Topamax can be prescribed for weight loss. All rights reserved. The drug information contained herein is subject to change and is not intended to cover all possible uses, directions, precautions, warnings, drug interactions, allergic reactions, or adverse effects. Najafizade et al24 demonstrated that zinc supplementation increased perception of all sweet, sour, bitter, and salty tastes among patients with head or neck cancer undergoing radiotherapy. Besides talking with your doctor, you can do some research on your own. Luykx et al12 performed a meta-analysis of 10 randomized controlled trials to compare topiramate-related adverse drug reactions in patients taking topiramate for epilepsy and those taking topiramate for migraine disorders. 2023 Healthline Media LLC. 15 min from L. If youd like to learn more about Topamax, talk with your doctor or pharmacist. The drug information contained herein is subject to change and is not intended to cover all possible uses, directions, precautions, warnings, drug interactions, allergic reactions, or adverse effects. Glaucoma. It is just as hard coming off this drug as it is going on it. Be sure to talk with your doctor about your health history before you take Topamax. But. But again, it sounds like over 50% of people take topomax with great results. A case of carbonation dysgeusia associated with the use of topiramate is reported in order to bring awareness to a lesser-known adverse effect of the medication so that providers may be able to more effectively counsel patients and provide potential solutions. If I had known, I would have done it as a preventative. Talk with your doctor if youre concerned about your weight while taking Topamax. I also lost abut 1/3 of my hair. Topamax may cause serious side effects. Let your doctor know if you have frequent or uncontrolled diarrhea while youre taking Topamax. An allergic reaction is possible after using Topamax. This helps researchers understand the risks of using Topamax during pregnancy, which can help others make decisions about their treatment. In the heart of nature, quiet, hiking trail at the foot of the chalet. Learn more about types of seizures, causes and symptoms, and how you can help someone having, Healthline has strict sourcing guidelines and relies on peer-reviewed studies, academic research institutions, and medical associations. After a while it turned into simple forgetfulness. Frequent diarrhea. But the following side effects may be more likely to happen in children: Also, when Topamax is taken by children, it may cause reduced bone mineral density (BMD). Its possible to have hair loss while taking Topamax. You can learn more about how we ensure our content is accurate and current by reading our. Can I take Aleeve if I'm on Topamax (topiramate)? Topiramate is a second-generation antiepileptic drug that is used in the treatment of seizure disorders and migraine headaches. Can diet help improve depression symptoms? Good if you want to lose weight. Can You Tell if You or Someone Else is About to Have a Seizure? chronic obstructive pulmonary disease (COPD), accessdata.fda.gov/drugsatfda_docs/label/2021/020505s063,020844s054lbl.pdf, Getting Relief from Migraines: Preventive and Acute Treatments, Seizure First Aid: How to Respond When Someone Has an Episode. If they do decide to prescribe Topamax, they may start you with a lower dose than usual. Apparently it does make soda taste weird!!!!!!!!!!! Tell your doctor if you have lung problems before starting Topamax. However, the drug can also cause some serious side effects which may require treatment. 7 Its use has been associated with weight loss; nausea and other gastrointestinal adverse effects; paresthesia in the hands, feet, or face; and cognitive and behavioral changes, including memory impairment, confusion, 2023 Healthline Media UK Ltd, Brighton, UK. Get answers from Cardiologists and top U.S. doctors, Our doctors evaluate, diagnose, prescribe, order lab tests, and recommend follow-up care. 6. An allergic reaction is possible after using Topamax. In rare cases, Topamax may cause serious skin reactions. They may also recommend that you visit an eye doctor. These articles might help: Disclaimer: Medical News Today has made every effort to make certain that all information is factually correct, comprehensive, and up to date. * This side effect can affect your ability to drive or safely operate machinery. - oh yea - been prescribed this to help prevent seizures. They can help you figure out if youre having other mood changes that could cause these side effects. Oh, yeah. It is difficult to ascertain exactly why use of a straw may enhance carbonation perception in the mouth. Apr 13, 2023 - Entire condo for $80. YorkshireLass1. This medication is also used to prevent migraine headaches and decrease how often you get . Can i go off topamax (topiramate) after 12 days? throat irritation. * To learn more about this side effect, see the Side effects explained section below. "Local trauma" to the tastebuds aka burning your tongue on hot stuff can change your sense of taste. In clinical trials, reduced growth was more commonly seen among children ages 6 to 9 years. After 35+ years of headaches/migraines and screaming at every GP I could find I finally got to see a neurologist at the Nuffield and have been on topiramate for 5 months. In clinical studies, some people had fewer headaches after 4 weeks of treatment. ! In most cases, these side effects should be temporary. If you have any eye problems while taking Topamax, tell your doctor right away. During a crisis, people who are hard of hearing can use their preferred relay service or dial 711 then 988. And do not stop using Topamax unless your doctor recommends it. Here we describe a case of carbonation dysgeusia potentially related to the initiation and continued use of topiramate following a generalized seizure. If you have questions about possible long-term side effects of Topamax, talk with your doctor or pharmacist. Pregnancy registries collect information about the drugs effects when used during pregnancy. Started topamax (topiramate) about 4 days ago and everything i eat runs right through me. I must be the only one with this crazy list, so I thought I would share! Search for other works by this author on: Courtney Doyle-Campbell, PharmD, AHSCP-CHC, Taste and smell disorders in clinical neurology, Drug-related taste disturbance: a contributing factor in geriatric syndromes, Influence of medications on taste and smell, Smell and taste disorders: a primary care approach, Topiramate for migraine prevention: an update, The roles of carbonic anhydrase in gustation, olfaction and chemical irritation, Topiramate for the prophylaxis of episodic migraine in adults, Are migraineurs at increased risk of adverse drug responses? Gabapentin can help control seizures as well as nerve pain from shingles. Mad that none of the doctors picked up on it. Bone problems. Although the sense of carbonation when drinking with a straw was not as intense as it was prior to topiramate initiation, she noticed considerable improvement; the straw enhanced the carbonation taste sensation enough to make some carbonated beverages palatable.. How should I manage side effects I may have from Topamax. Video chat with a U.S. board-certified doctor 24/7 in a minute. The brain fog was really bad at first. They are a BIG help and got my hair growing back. You should not take Topamax if youve ever had an allergic reaction to Topamax or any of its ingredients. Below, youll find lists of the drugs more common, mild, and serious side effects. We avoid using tertiary references. it totally sucks. anorexia, weight loss, difficulty with memory, taste perversion, diarrhea, hypoesthesia, nausea, abdominal pain and upper respiratory tract . Topiramate was started at a dosage of 25 mg by mouth twice daily and after 3 weeks titrated to a dosage of 100 mg by mouth twice daily for maintenance therapy. Carbonation dysgeusia as a result of topiramate therapy is not well identified in the literature but has been reported by patients in online chat forums.7 More frequently identified in the literature as causing carbonation taste alterations is acetazolamide, a carbonic anhydrase inhibitor. Our experts continually monitor the health and wellness space, and we update our articles when new information becomes available. Topamax doesnt rely heavily on your liver to help remove it from your body. This registry helps healthcare professionals collect information about the safety of medications such as Topamax during pregnancy. Taste perversion or taste dysgeusia in association with topiramate use has been reported in numerous randomized controlled trials; however, most of the trial reports did not define the specific manifestation of dysgeusia as carbonation dysgeusia. Najafizade N, Hemati S, Gookizade A et al. You may need additional blood tests to monitor your levels while youre taking Topamax. What I learned and what the Dr. Reccomended was take B vitamins every day. Maria Charbonneau, PharmD, Courtney Doyle-Campbell, PharmD, AHSCP-CHC, Corey Laskey, PharmD, BCPP, Kam Capoccia, PharmD, BCPS, CDE, Carbonation dysgeusia associated with topiramate, American Journal of Health-System Pharmacy, Volume 77, Issue 14, 15 July 2020, Pages 11131116, https://doi.org/10.1093/ajhp/zxaa123. Apparently it does make soda taste weird!!!!!!!!!! The serum topiramate concentration was determined 17 days after topiramate initiation, 3 days after a dosage increase to 75 mg twice daily, and was considered to be in the therapeutic range, at 6.2 g/mL (reference range, 5-20 g/mL). American Society of Health-System Pharmacists 2020. Then, you can share this information with your doctor. Before taking Topamax, tell your doctor if you have mood problems such as depression. bruising under the skin. Call 911 or the local emergency number, or text TALK to 741741 to communicate with a trained crisis counselor. A high temperature for children ages 2 years and older is above 99.5F (37.5C). Kidney problems. sorry but the topamax is totally working and it is worth it!! it was my drink. This may make some side effects more likely. In addition, weight and height may be affected in children taking Topamax. After I was on a steady dose for a while the agitation/ anxiety would go away. a common cold. Find a helpline in your country with. They can recommend ways to reach or maintain a weight thats healthy for you. These side effects are described above. The conditions and factors to consider include: Bone problems, such as osteoporosis. The drug may also cause a child who is breastfed to have diarrhea and sleepiness. I want real experience please not someone posting side effects to the medicine as I've read those already. Symptoms can include: feeling agitated, aggressive, or irritable, losing interest in activities you normally enjoy, Ask the tough question: Are you considering suicide?. They may recommend ways to ease your symptoms and determine whether you should keep taking Topamax. For me it stopped controlling my headaches after about 9 months. They will help keep your hair in great shape and keep it on your head. Summary. It has been FDA-approved since 1996 for the treatment of epilepsy in both children and adults. South-facing chalet in the municipality of Villard sur Doron. For more information, please see our everything tastes wrong, kind of like metal. For me it stopped controlling my headaches after about 9 months. The authors have declared no potential conflicts of interest. This list doesnt include all possible mild side effects of the drug. Post discussions, articles, and questions about uses, side effects, experiences, and any advances that may happen with this drug. Serious side effects that have been reported and their symptoms include: * For more information about this side effect, see Side effect specifics below. Examples of behavior and mood shifts Topamax can cause include: If you have any unusual shifts in mood while taking Topamax, call your doctor right away. Call 911 or your local emergency services number if you feel safe to do so. Topamax making carbonated drinks taste flat? Call your doctor if you have changes in taste while taking Topamax. Learn. "Thankfully, this is normally a temporary problem," Dr. Kaye says. Before taking Topamax, tell your doctor if you have kidney problems. If you have symptoms of a severe allergic reaction, such as swelling or trouble breathing, call 911 or your local emergency number right away. Read on to learn about potential common, mild, and serious side effects. Topamax is also commonly used to prevent migraine headaches in adults. They may be able to suggest ways to ease your symptoms. Examples include hair. If taken while breastfeeding, Topamax may pass into breast milk. The hair loss may or may not effect you but none of those vitamins or supplements are dangerous and can be found in everyday foods.
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